An Autoethnographic Journey in Developing Post-Ableist Music Therapy

Authors

  • Carolyn May Shaw New Zealand School of Music, Te Kōkī, Victoria University of Wellington, Aotearoa, New Zealand

DOI:

https://doi.org/10.15845/voices.v22i1.3314

Keywords:

posthumanism, ableism, normalisation, agonism

Abstract

This paper describes my journey in developing Post-Ableist Music Therapy and offers vignettes of its use in practice. In the style of an autoethnography, it recounts the way I began actively to address the ableism that was uncovered during the analysis process of my PhD research: ‘Developing Post-Ableist Music Therapy: An autoethnography exploring the counterpoint of a therapist experiencing illness/disability’(Shaw, 2019). I set about developing an ethic for practice that would address ableism by using the Foucauldian tool of creating the self as a work of art. I engaged in a creative process as a way to defamiliarise and reconceptualise practice. Post-Ableist Music Therapy was developed and extended the relational ethic beyond what was present in the practice studied, by drawing on aspects of posthumanism (valuing interdependence; Braidotti, 2013), agonistic pluralism (Chambers, 2001Cloyes, 2002Mouffe, 2016), and increasing the incorporation of disability studies. Posthumanism was used as a foundation for PAMT (due to the ableist tendencies of humanism), which differs to current music therapy orientations. Therefore, PAMT is offered as an alternative lens in the critical orientations’ apparatus: a social justice practice that is not based on empowerment and humanism, but instead on agonism and posthumanism.

Author Biography

Carolyn May Shaw, New Zealand School of Music, Te Kōkī, Victoria University of Wellington, Aotearoa, New Zealand

Dr Carolyn Shaw (she/her) is a New Zealand Registered Music Therapist and teaching fellow at the New Zealand School of Music, Te Kōkī, Victoria University of Wellington, Aotearoa. Her music therapy practice has predominantly centred on working with children, their families, and schools. Carolyn has an interest in critical approaches, posthumanism and disability studies.

References

Aarø, L., & Stige, B. (2012). Invitation to community music therapy. Routledge.

Aigen, K. (2005). Music-centered music therapy. Barcelona Publishers.

Aigen, K. (2014). The study of music therapy: Current issues and concepts. Taylor and Francis. https://doi.org/10.4324/9781315882703

Albrecht, G. (Ed.). (2006). Encyclopedia of disability. Sage Publications, Inc. https://doi.org/10.4135/9781412950510

Allan, J. (2006). Inclusion as ethical practice. In S. Tremain (Ed.), Foucault and the government of disability (pp. 281–297). University of Michigan Press.

Ansdell, G. (2002). Community music therapy and the winds of change. Voices: A World Forum for Music Therapy, 2(2). http://doi.org/http://dx.doi.org/10.15845/voices.v2i2.83

Ansdell, G., & Stige, B. (2018). Can music therapy still be humanist? Music Therapy Perspectives, 36(1). http://doi.org/10.1093/mtp/miy018

Axline, V. (1964). Dibs, in search of self. Random House Publishing Group.

Baines, S. (2013). Music therapy as an anti-oppressive practice. Arts in Psychotherapy, 40(1), 1–5. http://doi.org/10.1016/j.aip.2012.09.003

Bain, C., Grzanka, P., & Crowe, B. (2016). Toward a queer music therapy: The implications of queer theory for radically inclusive music therapy. Arts in Psychotherapy, 50, 22–33. https://doiorg/10.1016/j.aip.2016.03.004

Bakan, M. (2015). Toward an ethnographic model of disability in the ethnomusicology of autism. In B. Howe, S. Jensen-Moulton, N. Lerner, & J. Straus (Eds.), The Oxford handbook of music and disability studies (pp. 15–36). Oxford University Press.

Bakan, M. (2016). Music, autism, and disability aesthetics. Journal of the American Musicological Society, 69(2), 548–553.

Bennington, C., Shinoda, M., Hahn, J., Bourdon, R., Delson, B., & Farrel, D. (2003). Numb [Song recorded by Linken Park]. On Meteora. Warner Bros.

Boylorn, R., & Orbe, M. (2014). Introduction. In R. Boylorn & M. Orbe (Eds.), Critical autoethnography: Intersecting cultural identities in everyday life (pp. 13–26). Left Coast Press, Inc.

Braidotti, R. (2013). The posthuman. Polity.

Bruscia, K. (2014). Defining music therapy (3rd ed.). Barcelona Publishers.

Cameron, C. (2009). Tragic but brave or just crips with chips? Songs and their lyrics in the disability arts movement in Britain. Popular Music, 28(3), 381–396. http://doi.org/10.1017/S0261143009990122

Campbell, F. K. (2008a). Exploring internalized ableism using critical race theory. Disability and Society, 23(2), 151–162. http://doi.org/10.1080/09687590701841190

Campbell, F. K. (2008b). Refusing able(ness): A preliminary conversation about ableism. Media and Culture Journal, 11(3), 1–14. http://journal.media-culture.org.au/index.php/mcjournal/article/viewArticle/46

Campbell, F. K. (2009). Contours of ableism: The production of disability and abledness. Palgrave MacMillan. http://doi.org/10.1080/10304311003797498

Campbell, F. K. (2014). Ableism as transformative practice. In C. Cocker & T. Hafford-Letchfield (Eds.), Rethinking anti-oppressive theories for social work practice (pp. 78–92). Palgrave MacMillan. https://doi.org/10.1007/978-1-137-02398-8_6

Challis, B. (2009). Technology, accessibility and creativity in popular music education. Popular Music, 28(3), 425–431. http://doi.org/10.1017/S0261143009990158

Chambers, S. (2001). Language and politics: Agonistic discourse in “The West Wing.” Ctheory, a098a. http://www.ctheory.net/articles.aspx?id=317

Cloyes, K. (2002). Agonizing care: Care ethics, agonistic feminism and a political theory of care. Nursing Inquiry, 9(3), 203–214. https://doi.org/10.1046/j.1440-1800.2002.00147.x

Curtis, S. (2012). Music therapy and social justice: A personal journey. The Arts in Psychotherapy, 39, 209–213. http://dx.doi.org/10.1016/j.aip.2011.12.004

Davis, L. (2013). Introduction: Disability, normality, and power. In L. Davis (Ed.), The disability studies reader (4th ed., pp. 1–16). Routledge: Taylor and Francis Group.

Durie, M. (1985). A Māori perspective of health. Journal of Social Science and Medicine, 20(5), 483–486. https://doi.org/10.1016/0277-9536(85)90363-6

Durie, M. (1998). Whaiora: Māori health development (2nd Ed.). Oxford University Press.

Ellis, C., Adams, T. E., & Bochner, A. P. (2011). Autoethnography: An overview. Forum: Qualitative Social Research, 12(1), Art. 10.

English, Patricia. (2016). Imperfection: Embracing wabi-sabi. Liminalities: Tampa, 12(4), 1¬¬–9. http://liminalities.net/12-4/wabisabi.pdf

Erevelles, N. (2011). Disability and difference in global contexts: Enabling a transformative body politic. Palgrave McMillan.

Fisher, J. (2007). No search, no subject? Autism and the American conversion narrative. In M. Olsen (Ed.), Autism and representation (pp. 51–64). Routledge.

Foucault, M. (1980). Power/knowledge: Selected interviews and other writings 1972–1977. (C. Gordon, Ed.). The Harvester Press.

Foucault, M. (1982). The subject and power. Critical Inquiry, 8(4), 777–795. https://doi.org/10.1086/448181

Foucault, M. (1984). On the genealogy of ethics: An overview of work in progress. In P. Rabinow (Ed.), The Foucault reader: An introduction to Foucault’s thought (pp. 340–372). Pantheon Books.

Garland-Thomson, R. (1997). Extraordinary bodies: Figuring physical disability in American culture and literature. Columbia University Press.

Garland-Thomson, R. (2011). Misfits: A feminist materialist disability concept. Hypatia, 26(3), 591–609. https://doi.org/10.1111/j.1527-2001.2011.01206.x

Goodley, D. (2010). Disability studies: An interdisciplinary approach. Sage Publications, Inc.

Goodley, D., Lawthom, R., & Runswick-Cole, K. (2014). Post-human disability studies. Subjectivity, 7, 342–361.

Goodley, D., & Runswick-Cole, K. (2014). Becoming dishuman: Thinking about the human through dis/ability. Discourse: Studies in the Cultural Politics of Education, 37(1), 1–15. http://doi.org/10.1080/01596306.2014.930021

Gordon, C. (1991). Governmental rationality. In G. Burchell, C. Gordon, & P. Miller (Eds.), The Foucault effect: Studies in governmentality (pp. 1–52). Wheatsheaf.

Grant, A., Short, N., & Turner, L. (2013). Contemporary British autoethnography. Sense Publishers.

Gross, R. (2018). The social model of disability and music therapy: Practical suggestions for the emerging clinical practitioner. Voices:A World Forum of Music Therapy, 18(1). https://doi.org/10.15845/voices.v18i1.958

Hadley, S. (Ed.) (2006). Feminist perspectives in music therapy. Barcelona Publishers.

Hadley, S. (2014). Shifting frames: Are we really embracing human diversities? Voices: A World Forum for Music Therapy, 14(3). http://doi.org/https://voices.no/index.php/voices/article/view/801/666

Hadley, S. (2017). I don’t see you as Black/Gay/Disabled/Muslim/etc.: Microaggressions in everyday encounters. In A. Whitehead-Pleaux & X. Tan (Eds.), Cultural intersections in music therapy: Music, health, and the person (pp.11-22). Barcelona Publishers.

Hadley, S., & Thomas, N. (2018). Critical humanism in music therapy: Imagining the possibilities. Music Therapy Perspectives, 36(1). http://doi.org/10.1093/mtp/miy015

Halifax, N. (2009). Disability and illness in arts-informed research: Moving toward postconventional representations. Cambria Press.

Hodge, N. (2013). Counselling, autism and the problem of empathy. British Journal of Guidance and Counselling, 41(2), 105–116. http://doi.org/10.1080/03069885.2012.705817

Hodgson, N. (2014). He oro hauora: How do kaupapa Māori models of health relate to my music therapy practice in an adolescent acute mental health unit? [Masters thesis, Massey University and Victoria University of Wellington].

Hoskyns, S. (2017). The place of improvisation in case study research in music therapy. The New Zealand Journal of Music Therapy, 15, 9–36.

Howe, B., Jensen-Moulton, S., Lerner, N., & Straus, J. (2015). Introduction: Disability studies in music, music in disability studies. In B. Howe, S. Jensenmoulton, N. Lerner, & J. Straus (Eds.), The Oxford handbook of music and disability studies (pp. 1–14). Oxford University Press. https://doi.org/10.1093/oxfordhb/9780199331444.001.0001

Howe, B., & Jensen-Moulton, S. (2016). On the disability aesthetics of music. Journal of the American Musicological Society, 69(2), 525–563. https://doi.org/10.1525/jams.2016.69.2.525

Humpal, M. (2017). The culture of disability. In A. Whitehead-Pleaux & X. Tan (Eds.), Cultural intersections in music therapy: Music, health, and the person. Barcelona Publishers.

Kalenderidis, Z. (2020). The great reveal: The experiences of an Australian registered music therapist with a disability, an arts-based research project. Voices: A World Forum for Music Therapy. 20(1). https://doi.org/10.15845/voices.v20i1.2873Kenny, C. (2006). Music and life in the field of play: An anthology. Barcelona Publishers.

Kenny, C. (2015). Performing theory: Playing in the music therapy discourse. Journal of Music Therapy, 52(2), 457–486. http://doi.org/10.1093/jmt/thv019

Lee, C. (2003). The architecture of aesthetic music therapy. Barcelona Publishers.

Lennard, N., & Wolfe, C. (2017, January). Is humanism really humane? The New York Times. https://www.nytimes.com/2017/01/09/opinion/is-%20humanism-really-humane.html

Lubet, A. (2011). Music, disability, and society. Temple University Press.

McCaffrey, T., & Edwards, J. (2015). Meeting art with art: Arts-based methods enhance researcher reflexivity in research with mental health service users. Journal of Music Therapy, 52(4), 515–532. http://doi.org/10.1093/jmt/thv016

McFerran, K. (2018). Critical thinking in disability and mental health: Where did it come from and what does it mean for music therapy practice? In Music Therapy Online. https://musictherapyonline.org/p/critical-thinking

Metell, M., & Stige, B. (2015). Blind spots in music therapy. Toward a critical notion of participation in context of children with visual impairment. Nordic Journal of Music Therapy, 25(4), 300–318. http://doi.org/10.1080/08098131.2015.1081265

Ministry of Education. (2019). Key competencies. Retrieved January 5, 2019, from http://nzcurriculum.tki.org.nz/Key-competencies

Morgan, A. (2000). What is narrative therapy?: An easy to read introduction. Dulwich Centre Publications.

Mouffe, C. (2016). Democratic politics and conflict: An agonistic approach. Política Común, 9. https://doi.org/10.3998/pc.12322227.0009.011

O’Grady, L., & McFerran, K. (2006). Birthing feminist community music therapy. In S. Hadley (Ed.), Feminist perspectives in music therapy (pp. 63–80). Barcelona Publishers.

Oliver, M. (1996). Defining impairment and disability: Issues at stake. In C. Barnes & G. Mercer (Eds.), Exploring the divide (pp. 29–54). The Disability Press.

Pickard, B. (2020). A critical reflection on the Health and Care Professions Council Standards of Proficiency for music therapists: A critical disability studies perspective. British Journal of Music Therapy, 34(2), 82-94. https://doi.org/10.1177%2F1359457520971812

Pickard, B., Thompson, G., Metell, M., Roginsky, E., & Elefant, C. (2020). It’s not what’s done, but why it’s done: Music therapists’ understanding of normalisation, maximisation, and neurodiversity movement. Voices: A World Forum for Music Therapy, 20(3). https://voices.no/index.php/voices/article/view/3110/3068

Rickson, D., & McFerran, K. (2014). Creating music cultures in the schools: A perspective from community music therapy. Barcelona Publishers.

Rolvsjord, R. (2010). Resource oriented music therapy: In mental healthcare. Barcelona Publishers.

Ruud, E. (2010). Music therapy: A perspective from the humanities. Barcelona Publishers.

Sampson, E. (2003). Unconditional kindness to strangers. Theory and Psychology, 13(2), 147–175. https://doi.org/10.1177/0959354303013002001

Siebers, T. (2010). Disability aesthetics. University of Michigan Press. https://doi.org/10.3998/mpub.1134097

Shaw, C. (2019). Developing post-ableist music therapy: An autoethnography exploring the counterpoint of a therapist experiencing illness/disability [Doctoral thesis, Victoria University of Wellington, Wellington, New Zealand]. https://researcharchive.vuw.ac.nz/xmlui/handle/10063/8247

Slattery, P. (2001). The educational researcher as artist working within. Qualitative Inquiry, 7(3), 370–398. http://dx.doi.org/10.1177/107780040100700307

Small, C. (1998). Musicking: The meanings of performing and listening. Wesleyan University Press.

Sue, D. W. (2010). Microaggressions in everyday life: Race, gender, and sexual orientation. John Wiley & Sons, Inc. http://doi.org/10.1177/0361684311401818

Sue, D. W., & Sue, D. (2015). Counseling the culturally diverse: Theory and practice (7th ed.). John Wiley & Sons, Inc.

St. Pierre, J. (2015). Cripping communication: Speech, disability, and exclusion in liberal humanist and posthumanist discourse. Communication Theory, 25, 330– 348. http://doi.org/10.1111/comt.12054

Straus, J. (2011). Extraordinary Measures: Disability in music. Oxford University Press. http://doi.org/10.1093/acprof

Swain, J., & French, S. (2000). Towards an affirmation model of disability. Disability & Society, 15, 569–582.

Thomas, C. (2007). Sociologies of disability and illness: Contested ideas in disability studies and medical sociology. Palgrave MacMillan.

Tsiris, G. (2013). Voices from the “ghetto”: Music therapy perspectives on disability and music (A response to Joseph Straus’s book extraordinary measures: Disability in music). International Journal of Community Music, 6(3), 333–343. https://doi.org/10.1386/ijcm.6.3.333_1

Tsiris, G. (2018, July 04-05). A misunderstood guest, a misunderstood host: Music therapy within disability studies [conference session]. Cripping the muse. Leeds, UK. https://crippingthemuse.com/contributors/

Viega, M., & Forinash, M. (2016). Arts-based research. In B. Wheeler & K. Murphy (Eds.), Music therapy research (3rd ed., pp. 491–504). Barcelona Publishers.

Walker, N. (2014). What is autism? Neurocosmopolitanism: Nick Walker’s notes on neurodiversity, autism, and cognitive liberty. http://neurocosmopolitanism.com/what-is-autism/

Wolbring, G. (2008). The politics of ableism. Development, 51, 252–258. http://doi.org/10.1057/dev.2008.17

Wolbring, G. (2009). What next for the human species? Human performance enhancement, ableism and pluralism. Development Dialogue, 2(August), 141–163.

Wolbring, G. (2012). Expanding ableism: Taking down the ghettoization of impact of disability studies scholars. Societies, 2, 75–83. http://doi.org/10.3390/soc2030075

World Health Organisation. (2011). World report on disability. http://www.who.int/disabilities/world_report/2011/report.pdf

Photo of author Carolyn May Shaw

Published

2022-03-01

How to Cite

Shaw, C. M. (2022). An Autoethnographic Journey in Developing Post-Ableist Music Therapy. Voices: A World Forum for Music Therapy, 22(1). https://doi.org/10.15845/voices.v22i1.3314

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Research