Finding Our Voices, Singing Our Truths: Examining How Quality of Life Domains Manifested in a Singing Group for Autistic Adults
DOI:
https://doi.org/10.15845/voices.v20i2.2554Keywords:
group singing, Autistic adults, neurodiversity, quality of life, health & wellbeing, community music therapyAbstract
A growing body of literature indicates that participation in singing groups has a range of health and wellbeing benefits for the general adult population and for various adult cohorts with specific challenges/needs. However, no research had been conducted on potential benefits of group singing for Autistic adults. Furthermore, the neurodiversity movement rejects a biomedical approach to autism and champions the need for supports that will empower individuals on the autism spectrum to participate in society on their own terms. This aligns well with community music therapy (CoMT) philosophy which maintains that all persons have a right to access and participate in music experiences that promote personal health and wellbeing as well as serve as an expression of individuality, culture, and community. Therefore, the present research investigated how quality of life (QoL) variables (considered as components/determinants of health and wellbeing) manifested for eight Autistic adults who participated in 12 group singing sessions. A mixed methods concurrent transformative design was used with priority given to qualitative data. Results illustrate how subdomains contained within overarching QoL domains of Being, Belonging, and Becoming were realized by the group participants. Limitations of the study as well as implications for practice and research are presented.
References
Aigen, K. (2016). Contemporary social movements in autism: Implications for music therapy research (Unpublished manuscript). American Music Therapy Association national conference lecture notes.
Allen, R., Hill, E.L., & Heaton, P.F. 2009. ‘Hath charms to soothe … ’: An exploratory study of how high-functioning adults with ASD experience music. Autism, 13(1), 21-41. https://doi.org/10.1177/1362361307098511.
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). American Psychiatric Association.
Ansdell, G. (2002). Community music therapy and the winds of change: A discussion paper. In C. B. Kenny & B. Stige (Eds.), Contemporary voices in music therapy: Communication, culture, and community (pp. 109-142). Unipub Forlag.
Ansdell, G., & Pavlicevic, M. (Eds.). (2004). Community music therapy. Jessica Kingsley.
Autism Canada. (2017). About autism: Characteristics. https://autismcanada.org/about-autism/characteristics/.
Autistic Self-Advocacy Network (ASN). (2018a). Position statements. http://autisticadvocacy.org/about-asan/position-statements/.
Autistic Self-Advocacy Network (ASN). (2018b). About. http://autisticadvocacy.org/about-asan/.
Autistic Self-Advocacy Network (ASN). (2018c). About autism. http://autisticadvocacy.org/about-asan/about-autism/.
Bailey, B. A., & Davidson, J. W. (2003). Amateur group singing as a therapeutic instrument. Nordic Journal of Music Therapy, 12, 18-33, https://doi.org/10.1080/08098130309478070.
Bailey, B. A., & Davidson, J. W. (2005). Effects of group singing and performance for marginalized and middle-class singers. Psychology of Music, 33, 269-303, https://doi.org/10.1177/0305735605053734.
Bakan, M. B. (2014). Ethnomusicological perspectives on autism, neurodiversity, and music therapy. Voices: A World Forum for Music Therapy, 14(3), 1-23, https://doi.org/10.15845/voices.v14i3.799.
Bakan, M. B. (2018). Speaking for ourselves: Conversations on life, music, and autism. Oxford University Press.
Bannan, N., & Montgomery-Smith, C. (2008). 'Singing for the Brain': Reflections on the human capacity for music arising from a pilot study of group singing with Alzheimer's patients. The Journal of the Royal Society for the Promotion of Health, 128, 73-78, https://doi.org/10.1177/1466424007087807.
Bergmann, T. (2018). Music therapy for people with autism spectrum disorder. In J. Edwards (Ed.), The Oxford handbook of music therapy (pp. 186-209). Oxford University Press.
Bonilha, A. G., Onofre, F., Vieira, M. L., Prado, M. Y. A., & Martinez, J. A. B. (2009). Effects of singing classes on pulmonary function and quality of life of COPD patients. International Journal of COPD, 4, 1-8, https://doi.org/10.2147/COPD.S4077.
Boso, M., Emanuele, E., Minazzi, V., Abbamonte, M., & Politi, P. (2007). Effect of long-term interactive music therapy on behavior profile and musical skills in young adults with severe autism. The Journal of Alternative and Complementary Medicine, 13(7), 709-712, https://doi.org/10.1089/acm.2006.6334.
Brandalise, A. (2015). Music therapy and theatre: A community music therapy socio- cultural proposal for the inclusion of persons with autism spectrum disorders. Voices: A World Forum for Music Therapy, 15(1), https://doi.org/10.15845/voices.v1i1.733.
Brown, L. (2018). Identity-first language. http://autisticadvocacy.org/about-asan/identity-first-language/.
Bruscia, K. E. (2002). Boundaries of GIM and bonny Method. In K. Bruscia & D. Grocke (Eds.), Guided imagery and music: The Bonny method and beyond (pp. 37-61). Barcelona.
Bruscia, K. E. (2014). Defining music therapy (3rd ed.). Barcelona.
Buetow, S. A., Talmage, A., McCann, C., Fogg, L., & Purdy, S. (2014). Conceptualizing how group singing may enhance quality of life with Parkinson’s disease. Disability and Rehabilitation: An International, Multidisciplinary Journal, 36(5), 430-433, https://doi.org/10.3109/09638288.2013.793749.
Busch, S. L., & Gick, M. (2012). A quantitative study on choral singing and psychological well-being. Canadian Journal of Music Therapy, 18(1), 45-61, https://doi.org/10.1108/17465721211207275.
Carpenter, S. (2015). A philosophical and practical approach to an inclusive community chorus. International Journal of Community Music, 8(2), 197-210, https://doi.org/10.1386/ijcm.8.2.197_1.
Clark, I., & Harding, K. (2012). Psychosocial outcomes of active singing interventions for therapeutic purposes: A systematic review of the literature. Nordic Journal of Music Therapy, 21(1), 80-98, http://dx.doi.org/10.1080/08098131.2010.545136.
Clarkson, G. (1991). Music therapy for a nonverbal Autistic adult. In K. Bruscia (Ed.), Case studies in music therapy (pp. 373-385). Barcelona.
Clarkson, G. (1995). Adapting a guided imagery and music series for a nonverbal man with autism. Journal of the Association for Music & Imagery, 4, 121-138.
Clarkson, G. (1998). I dreamed I was normal: A music therapist’s journey into the realms of autism. MMB Music.
Clarkson, G. (1998-1999). Spiritual insights of a G.I.M. client with Autism. Journal of the Association for Music & Imagery, 6, 87-103.
Clements-Cortes, A. A. (2013). Buddy's Glee Club: Singing for life. Activities, Adaptation & Aging, 37(4), 273-290, https://doi.org/10.1080/01924788.2013.845716.
Clift, S. (2012). Singing, wellbeing, and health. In R. A. R. MacDonald, G. Kreutz, & L. Mitchell (Eds.), Music, health, and wellbeing (pp. 113-124). Oxford University Press.
Clift, S. M., & Hancox, G. (2001). The perceived benefits of singing: Findings from preliminary surveys of a university college choral society. The Journal of the Royal Society for the Promotion of Health, 121, 248-256, https://doi.org/10.1177/146642400112100409.
Clift, S., Hancox, G., Morrison, I., Shipton, M., Page, S., Skingley, A., & Vella-Burrows, T. (2016). Group singing as a public health resource. In S. Clift & P. Camic (Eds.), Oxford textbook of creative arts, health and wellbeing (pp. 251-257). Oxford University Press.
Clift, S., Hancox, G., Staricoff, R., & Whitmore, C. (2008). Singing and health: Summary of a systematic mapping and review of non-clinical research. Sidney De Haan Research Centre for Arts and Health.
Clift, S. M., Nicol, J., Raisbeck, M., Whitmore, C., & Morrison, I. (2010). Group singing, wellbeing and health: A systematic mapping of research evidence. UNESCO Refereed E-Journal, Multi-Disciplinary Research in the Arts, 2(1), 1-25.
Cohen, G. D., Perstein, S., Chapline, J., Kelly, J., Firth, K. M., & Simmens, S. (2006). The impact of professionally conducted cultural programs on the physical health, mental health, and social functioning of older adults. The Gerontologist, 46(6), 726-773, https://doi.org/https://doi.org/10.1093/geront/46.6.726.
Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). Lawrence Earlbaum Associates.
Cohen, M. L. (2007). Explorations of inmate and volunteer choral experiences in a prison-based choir. Australian Journal of Music Education, 1, 61-72.
Dassa, A., & Amir, D. (2014). The role of singing familiar songs in encouraging conversation among people with middle to late stage Alzheimer’s disease. Journal of Music Therapy, 51(2), 131-153, https://doi.org/10.1093/jmt/thu007.
Di Benedetto, P., Cavazzon, M., Mondolo, F., Rugiu, G., Peratoner, A., & Biasutti, E. (2009). Voice and choral singing treatment: A new approach for speech and voice disorders in Parkinson’s disease. European Journal of Physical and Rehabilitation Medicine, 45, 13-19.
Engel, G. L. (1977). The need for a new medical model: A challenge for biomedicine. Science, 196, 129-136.
Engen, R. (2005). The singer’s breath: Implications for treatment of persons with emphysema. Journal of Music Therapy, 42(1), 20-48, https://doi.org/10.1093/jmt/42.1.20.
Faulkner, R., & Davidson, J. W. (2006). Men in chorus: Collaboration and competition in homo-social vocal behaviour. Psychology of Music, 34(2), https://doi.org/10.1177/0305735606061853.
Fischer, R. (1991). Original song drawings in the treatment of a developmentally disabled Autistic adult. In K. Bruscia (Ed.), Case studies in music therapy (pp. 359-371). Barcelona.
Fung, C. H. M. (2009). Asperger's and musical creativity: The case of Erik Satie. Personality and Individual Differences, 46(8), 775-783, https://doi.org/http://dx.doi.org/10.1016/j.paid.2009.01.019.
Gick, M. L. (2011). Singing, health and well-being: A health psychologist’s review. Psychomusicology: Music, Mind and Brain, 21(1-2), 176-207, https://doi.org/10.1037/.
Goodridge, D., Nicol, J. J., Horvey, K. J., & Butcher, S. (2013). Therapeutic singing as an adjunct for pulmonary rehabilitation participants with COPD: Outcomes of a feasibility study. Music & Medicine, 5(3), 169-176, https://doi.org/10.1177/1943862113493012.
Graham, J. (2004). Communicating with the uncommunicative: Music therapy with pre‐verbal adults. British Journal of Learning Disabilities, 32(1), 24-29, https://doi.org/10.1111/j.1468-3156.2004.00247.x.
Grape, G., Theorell, T., Wikstrom, B. M., & Ekman, R. (2009). Choir singing and fibrinogen, VEGF, cholecystokinin, and motilin in IBS patients. Medical Hypotheses, 72(2), https://doi.org/10.1016/j.mehy.2008.09.019.
Hanson, W. E., Creswell, J. W., Plano Clark, V. L., Petska, K. S., & Creswell, J. D. (2005). Faculty Publications, Department of Psychology. Retrieved from http://digitalcommons.unl.edu/psychfacpub/373.
Hillier, A., Greher, G., Poto, N., & Dougherty, M. (2011). Positive outcomes following participation in a music intervention for adolescents and young adults on the autism spectrum. Psychology of Music, 40(2), 201-215, https://doi.org/10.1177/0305735610386837.
Hillier, J., Kopec, J., Poto, N., Tivarus, M., & Beversdorf, D. Q. (2016). Increased physiological responsiveness to preferred music among young adults with autism spectrum disorders. Psychology of Music, 44(3), 481-492, https://doi.org/10.1177/0305735615576264.
Hillman, S. (2002). Participatory singing for older people: A perception of benefit. Health Education, 102, 163-171, https://doi.org/10.1108/09654280210434237.
Hooper, J., McManus, A., & McIntyre, A. (2004). Exploring the link between music therapy and sensory integration: An individual case study. British Journal of Music Therapy, 18(1), 15-23, https://doi.org/10.1177/135945750401800104.
Hwang, Y. I., Foley, K. R., & Trollor, J. N. (2017). Aging well on the autism spectrum: The perspectives of autistic adults and carers. International Psychogeriatrics, 29(12), 2033-2046, https://doi.org/10.1017/S1041610217001521.
Jennes-Coussens, M., Magill-Evans, J., & Koning, C. (2006). The quality of life of young men with Asperger syndrome: A brief report. Autism, 10, 403-414, https://doi.org/10.1177/1362361306064432.
Jones, S. R. (2013). Autistic people are…musical! http://www.themusicalautist.org/autistic-people-are-musical/.
Judd, M., & Pooley, J. A. (2014). The psychological benefits of participating in group singing for members of the general public. Psychology of Music, 42(2), 269-283, https://doi.org/10.1177/0305735612471237.
Kaplan, R. S., & Steele, A. L. (2005). An analysis of music therapy program goals and outcomes for clients with diagnoses on the autism spectrum. Journal of Music Therapy, 42(1), 2-19, https://doi.org/10.1093/jmt/42.1.2.
Kenny, D. T., & Faunce, G. (2004). The impact of group singing on mood, coping and perceived pain in chronic pain patients attending a multidisciplinary pain clinic. . Journal of Music Therapy, 41, 241-258, https://doi.org/10.1093/jmt/41.3.241.
Kern, P., Rivera, N. R., Chandler, A., & Humpal, M. (2013). Music therapy services for individuals with Autism Spectrum Disorder: A survey of clinical practices and training needs. Journal of Music Therapy, 50(4), 274-303, https://doi.org/10.1093/jmt/50.4.274.
Kreutz, G., Bongard, S., Rohrmann, S., Hodapp, V., & Grebe, D. (2004). Effects of choir singing or listening on secretory immunoglobulin A, cortisol, and emotional state. Journal of Behavioral Medicine, 27(6), 623-635, https://doi.org/10.1007/sl0865-004-0006-9.
Kreutz, G., & Brünger, P. (2012). A shade of grey: Negative associations with amateur choral singing,. Arts & Health, 4(3), 230-238, https://doi.org/10.1080/17533015.2012.693111.
Lesta, B., & Petocz, P. (2006). Familiar group singing: Addressing mood and social behaviour of residents with dementia displaying sundowning. Australian Journal of Music Therapy, 17, 2-17, http://www.austmta.org.au/.
Linnemann, A., Schnersch, A., & Nater, U. M. (2017). Testing the beneficial effects of singing in a choir on mood and stress in a longitudinal study: The role of social contacts. Musicae Scientiae, 21(2), 195-212, https://doi.org/https://doi.org/10.1177/1029864917693295.
Livesay, L., Morrison, I., Clift, S., & Camic, P. M. (2012). Benefits of choral singing for social and mental wellbeing: Qualitative findings from a cross-national survey of choir members. Journal of Public Mental Health, 11, 10-27, https://doi.org/10.1108/17465721211207275.
Maloney, S. T. (2006). Glenn Gould: Autistic savant. In N. Lerner & J. N. Straus (Eds.), Sounding off: Theorizing disability in music (pp. 121-136). Routledge.
Mateos-Moreno, D., & Atencia-Dona, L. (2013). Effect of a combined dance/movement and music therapy on young adults diagnosed with severe autism. The Arts in Psychotherapy, 40, 465-472, http://dx.doi.org/10.1016/j.aip.2013.09.004.
McConnell-Henry, T., Chapman, Y., & Francis, K. (2011). Member checking and Heideggerian phenomenology: A redundant component. Nurse Researcher, 18(2), 28-37, https://doi.org/10.7748/nr2011.01.18.2.28.c8282.
McQuigge, M. (2018). Adults with autism often misunderstood and lack support. The Canadian Press, http://www.cbc.ca/news/health/autism-seniors-1.4607219.
Mellor, L. (2013). An investigation of singing, health and well-being as a group process. British Journal of Music Education, 30(2), 177-205, https://doi.org/10.1017/S0265051712000563.
Metell, M. (2014). Dis/abling musicking: Reflections on a disability studies perspective in music therapy. Voices: A World Forum for Music Therapy, 14(3), https://doi.org/10.15845/voices.v14i3.786.
Milen, M. T., & Nicholas, D. B. (2017). Examining transitions from youth to adult services for young persons with autism,. Social Work in Health Care, 56(7), 636-648, https://doi.org/10.1080/00981389.2017.1318800.
Musical Autist. (2018). About. http://www.themusicalautist.org/about/.
Pavlakou, M. (2009). Benefits of group singing for people with eating disorders: Preliminary findings from a non-clinical study. Approaches: Music Therapy & Special Music Education, 1(1), http://approaches.primarymusic.gr.
Raphael, D., Brown, I., & Renwick, R. (1999). Psychometric properties of the full and short versions of the Quality of Life Instrument Package: Results from the Ontario province-wide study. International Journal of Disability, Development and Education, 46(2), 157-168, https://doi.org/10.1080/103491299100605.
Renty, J. O., & Roeyers, H. (2006). Quality of life in high-functioning adults with autism spectrum disorder: The predictive value of disability and support characteristics. Autism, 10, 511-524, https://doi.org/10.1177/1362361306066604.
Rolvsjord, R. (2010). Resource-oriented music therapy in mental health care. Barcelona.
Ruud, E. (2010). Music therapy: A perspective from the humanities. Barcelona.
Saville, R. (2007). Music therapy and autistic spectrum disorder. In T. Watson (Ed.), Music therapy with adults with learning disabilities (pp. 33-46). Routledge.
Shiloh, C. J., & Lagasse, B. A. (2014). Sensory friendly concerts: A community music therapy initiative to promote Neurodiversity. International Journal of Community Music, 7(1), 113-128, https://doi.org/10.1386/ijcm.7.113_1.
Silber, L. (2005). Bars behind bars; the impact of a women’s prison choir on social harmony. Music Education Research, 7(2), 251-271, https://doi.org/10.1080/14613800500169811.
Skingley, A., Page, S., Clift, S., Morrison, I., Coulton, S., Treadwell, P., & Shipton, M. (2014). 'Singing for breathing': Participants' perceptions of a group singing programme for people with COPD. Arts & Health: An International Journal of Research, Policy and Practice, 6(1), 59-74, https://doi.org/10.1080/17533015.2013.840853.
Stacy, R., Brittain, K., & Kerr, S. (2002). Singing for health: An exploration of the issues. Health Education, 102, 156-162, https://doi.org/10.1108/09654280210434228.
Stewart, N. A. J., & Lonsdale, A. J. (2016). It’s better together: The psychological benefits of singing in a choir. Psychology of Music, 44(6), 1240-1254, https://doi.org/10.1177/0305735615624976.
Stige, B. (2002). Culture-centered music therapy. Barcelona.
Stige, B. (2012). Health musicking: A perspective on music and health as action and performance. In R. MacDonald, G. Kreutz, & L. Mitchell (Eds.), Music, health, and wellbeing (pp. 183-195). Oxford University Press.
Straus, J. N. (2014). Music therapy and autism: A view from disability studies. Voices: A World Forum for Music Therapy, 14(3), https://doi.org/10.15845/voices.v14i3.785.
Summers, S. G. (1999). A tapestry of voices: Community building with a geriatric choir reflected in a music therapy model of practice. Proquest Dissertations, (Document ID No. 729213201).
Tamplin, J. (2011). Singing for respiratory muscle training: Using therapeutic singing and vocal interventions to improve respiratory function and voice projection for people with a spinal cord injury. In F. Baker & S. Uhlig (Eds.), Voicework in music therapy: Research and practice (pp. 147-162). Jessica Kingsley.
Tamplin, J., Baker, F. A., Jones, B., Way, A., & Lee, S. (2013). ‘Stroke a Chord’: The effect of singing in a community choir on mood and social engagement for people living with aphasia following a stroke. Neurorehabilitation, 32(4), 929-941, https://doi.org/10.3233/NRE-130916.
The Quality of Life Model (n.d.). Retrieved June 19, 2016 from http://sites.utoronto.ca/qol/qol_model.htm.
Turry, A., & Marcus, D. (2003). Using the Nordoff-Robbins approach to music therapy with adults diagnosed with autism. In D. J. Wiener & K. Linda (Eds.), Action therapy with families and groups: Using creative arts improvisation in clinical practice (pp. 197-228). American Psychological Associatio. http://dx.doi.org/10.1037/10610-009.
Vaillancourt, G. (2012). Music therapy: A community approach to social justice. The Arts in Psychotherapy, 39, 173-178, https://doi.org/10.1016/j.aip.2011.12.011.
Vaillancourt, G., Da Costa, D., Han, E., & Lipski, G. (2018). An intergenerational singing group: A community music therapy qualitative research project and graduate student mentoring initiative. Voices: A World Forum for Music Therapy, 18(1), 1-17, https://doi.org/10.15845/voices.v18i1.883.
Wager, K. M. (2000). The effects of music therapy upon an adult male with autism and mental retardation: A four-year case study. Music Therapy Perspectives, 18(2), 131-140, https://doi.org/10.1093/mtp/18.2.131.
Walker, N. (2018). The neurodiversity paradigm. https://autisticuk.org/neurodiversity/.
Warnock, T. (2011). Voice and the self in improvised music therapy. British Journal of Music Therapy, 25(2), 32-47, https://doi.org/10.1177/135945751102500204.
Young, L. (2009). The potential health benefits of community based singing groups for adults with cancer. Canadian Journal of Music Therapy, 15(1), 11-27.
Young, L., & Nicol, J. J. (2011). Perspectives on singing and performance in music therapy. In A. Williamon, D. Edwards, & L. Bartel (Eds.), Proceedings of the International Symposium on Performance Science (pp. 129-134). Association Européenne des Conservatoires.
Young, L., & Pringle, A. (2018). Examining lived Experiences of singing in a community hospice bereavement support music therapy group. Bereavement Care, 37(2), 55-66, https://doi.org/10.1080/02682621.2018.1493646.
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